45 rare diseases in China have been included in the national medical insurance catalog, covering 26 rare diseases.
According to Xinhua News Agency reported on November 3, the reporter learned from the 2022 China Rare Disease Conference in Beijing that the national medical insurance drug catalog was adjusted in 2022.Preferentially entering the medical insurance catalog.
Huang Huabo, director of the Medical Service Management Department of the National Medical Insurance Bureau of China, introduced that since 2018, 19 rare disease drugs have been added to the medical insurance drug catalog through negotiations, with an average price reduction of 52.6%.
Huang Huabo said that considering that some negotiating drugs including rare disease drugs have high prices, low use frequency, and certain difficulties in hospital equipment. China establishs a "dual channel" mechanism.The advanced pharmacies of negotiating drugs are equipped with the same reimbursement policy as the hospital to relieve the "urgent" medication for patients.
According to reports, in the next step, China will continue to explore and improve the rare medical drug guarantee mechanism, continue to promote the adjustment of national medical insurance and drug catalogs, improve the negotiating drug equipment mechanism, strengthen policy connection, use basic medical insurance, major illness insurance,, andThe multi -guarantee function of medical assistance strives to provide better guarantee for patients with rare diseases.
According to data from the Rare Disease Alliance in China, there are more than 20 million patients with various rare diseases in China, and more than 200,000 new patients are added each year.
